The Blog

Last weekend, as my family and I returned to dock after a brief kayak ride on a cloudy day at the Jersey Shore, we were…

Do you want to know the answer…when there’s not much you can do about it? It must be what goes through the mind of every…

I write a lot about my invisible chronic illness to help inform folks who may be Google searching for answers or just commiseration. I’ve been…

You lick a stamp on a letter to your old self​​​​​​​You always liked being good at things, didn’t youIsn’t it funny what a person can…

I’ve been posting quite a bit lately about my journey with the chronic illness CVID. It’s been a pretty rough few months, but I am…

By the time I open my eyes my husband has already done the grueling work of getting the kids dressed, fed, and off to school.…

I’ve written before about discovering my primary immunodeficiency and living with Common Variable Immune Deficiency. I’ve also talked about how the diagnosis was pretty much done…

Having a rare chronic illness – in my case primary immune deficiency – is more than just physically exhausting. It is emotional torture, rife with conflicting advice,…